Fern talks briefly about what you'll hear at a European Aniridia Conference, who attends and why.

The conference combines excellence in aniridia research and clinical practice plus patient engagement. 
By sharing the insights of those developing treatments and living with the complex visual impairment, the event’s goal is to upskill each other, prevent sight loss and deal with its other effects.

Aniridia Network

European Aniridia Conference

Eleanor talk about the first meeting about aniridia in Ireland during a radio interview with Phoenix FM's Access All Areas Show:

"Aniridia Network UK, have been superb. They've supported me all along since last May They gave me one of their trustees to work alongside over the past 11 months, Martin and James kept in constant contact with me as well throughout, so that was very good.

It is mainly through the social media that we've done it. And we've started up now an Aniridia Ireland Facebook group as well. And I had a lot of help from a lady who herself has aniridia, Sinead Kane. People might have heard of Sinead, she was of course on the radio and the Late Late Show, and is a well known marathon runner. Sinead is fantastic with social media as well, so she did Twitter and Facebook for us.

Those delegates who were there listening were delighted with the programme that I had arranged. It was very successful, so I want to keep the momentum of it going. I was delighted with my conference."

Interview- Eleanor Burke

Katie, Chair of Aniridia Network UK talks about the condition aniridia

About Aniridia

Katie, Chair of Aniridia Network UK talks about the organisation and how she and other have got involved with it.

About Aniridia Network UK

Fern describes the amazing experience of coming to a conference hosted by Aniridia Network and meeting so many people who really understand about life with the rare genetic eye condition aniridia.