so many times

New 《D&B》Starts: Friday 13th December. 
Mixed By: DJ PEDRO PEREZ 

Ceo: LOST PILGRIM MEDIA

This is a promo....

Live from LOST STUDIOS...[Sutton In Ashfield]

Includes My Own Track At End Called
NIGHTSHIFT 

MESSY Podcast Promo [DJ Pedro Perez] Live Studio Mix

GO OFF

Clubbin'

Damn (prod. @taleslink)

Nrima

Ye olde vegan. Love animals? It takes a lot of love to not eat/wear/exploit/gamble on their precious lil souls. Be a safe human bean in a world that 'forgot' to value kindness to animals/people/mama earth xx

PS. If you find this page + we share a lot of DNA 🙃 (hi to my long lost siblings), please get checked for Serrated Polyposis Syndrome (SPS), Factor V Leiden, Endometriosis + Hypermobile Ehlers Danlos Syndrome (hEDS).

SPS :: I had nil symptoms: x6 surgeries in 14 months (every 3mths); 74+ biopsies, most precancerous + rapid recurrence found at 2 sites in Dec 2024 + Feb 2025 (polyps usually take 10yrs to grow; these popped up in 3 months). My Specialist biopsied scar tissue from these sites in Sep 2024; recurrence found Dec 2024 + Feb 2025. GI Risk Mgmt appt mid 2025. My 7th surgery in 20 month is in august 2025. DNA testing at Westmead Familial Cancer Service in Dec 2024 for SPS (thankfully, this excluded other polyposis conditions, so we *only* have to worry about inheriting bowel cancer).

Despite my Gastroenterologist + Geneticist sending letter (2024 + 2025) advising the risk to my first degree relatives, NSW Health + The Royal Hospital for Women, Sydney (IVF Clinic where we were conceived) opted not to search for my siblings to let them know to get checked (they're at x3 times the risk of bowel cancer). My Geneticist will do her best to ensure my siblings are told, even if I can't - there's a contingency plan.

My Gastroenterologist + Geneticist have been really shocked that NSW Health + the RHW haven't taken the necessary steps to tell my siblings + our biological father, his children (also our siblings) + grandchildren - they are also at x3 times the risk of bowel cancer. Interestingly, even if my relatives have a clear scope, my Geneticist was emphatic that they'd need repeat scopes every 5 years - which should give an indication of their risk. I've offered to submit my DNA to be checked against the Guthrie Test DNA databases - TBC! We really need a National approach to ensure consistency + prevent individual states/IVF Clinics from adopting a cavalier cowboy approach to disseminating (or not) critical health information to our relatives (our family) 🤔

Please know I've tried to get politicians to help protect my siblings :: Federal, NSW + VIC. I haven't had the energy to ask for help from the media yet. I feel so much guilt that I have this information + my siblings don't, yet no one seems to care. We matter, until we don't. IVF Statistics that count :: live births (not premature deaths from decidedly unsexy inherited conditions). It's a bum deal 🥳🥁

I've been vegan for 19 years, alcohol-free for a decade (after I read the links to cancer; there's no safe amount, even 1 drink per day or binge drinking significantly increases our risk). As my GP said, 'You can do everything right but you can't outrun a genetic condition'.

Love from a very tired human bean ♥️⚓

PS. I'm on GEDmatch (A189256) so irrespective of where you've taken a DNA test, you'll be able to upload your raw DNA data file. Most of my work is on Ancestry; if you need help accessing it, reach out to my brother, Kieron (NoK). Our DNA is a puzzle! I've solved many other cases but our relatives must have migrated everywhere - we have close matches in NZ, UK, US, etc. Maybe it'll fall into place in time.

Nrima

Gel Quinn Hewitt

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