In this episode, we  hear from Dannell Shu, whose son was born with severe brain damage. Dannell discusses the role the pediatric palliative care played not just in improving Levi’s quality of life, but in supporting the entire family as it navigated the waters of his chronic condition. Jody Chrastek, a nurse on the Shu family’s palliative care team, details how pediatric palliative care brought joy into Levi’s life in this moving take on what it means to care for a child living with serious illness.

A Quality Life: The Shu Family's Pediatric Palliative Care Story

In this video, actors portray family, patients, and clinicians to convey the challenges in delivering palliative care as well as presenting approaches to those challenges.

Initial publication: September 30, 2016
Last reviewed: March 18, 2021

Please visit: www.openpediatrics.org
 
OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.

For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu

"Palliative Care Clinical Vignette" by Dave Casavant for OPENPediatrics

In this episode Dr. McPherson interviews Dr. Susan Kristiniak who is the Associate Director for the University of Pennsylvania Health System in palliative care.

Episode 8 Dr. Lynn McPherson and Dr. Susan Kristiniak Aromatherapy Podcast

AI is being used to enhance and improve life in varied and often incredible ways. But what if we could use AI to improve the end of our lives, too? Our guest today is Anand Avati, a graduate student in the Artificial Intelligence Lab at Stanford University's Computer Science Department. Anand is co-author of a research paper entitled "Improving Palliative Care with Deep Learning" which details his team's use of a deep learning system to predict patient mortality with the aim of improving access to palliative care for critically-ill patients.

How AI Can Improve Access to Palliative Care

Ep. 47: How AI Can Improve Access to Palliative Care

GetPalliativeCare.org's podcast, A Quality Life, tells the real-life stories of people living with a serious illness, and their families. Each episode explores how palliative care specialists have helped to manage the symptoms and stress of their serious illness, and improve quality of life

A Quality Life: The Shu Family's Pediatric Palliative Care Story

Get Palliative Care

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