In this video, actors portray family, patients, and clinicians to convey the challenges in delivering palliative care as well as presenting approaches to those challenges.

Initial publication: September 30, 2016
Last reviewed: March 18, 2021

Please visit: www.openpediatrics.org
 
OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.

For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu

"Palliative Care Clinical Vignette" by Dave Casavant for OPENPediatrics

Amy Berman is a nurse, a nationally recognized expert in care of the aged and a senior program officer at the John A. Hartford Foundation. When she was diagnosed with Stage 4 inflammatory breast cancer in 2010, she had some very difficult decisions to make about her treatment options. Faced with discouraging odds of surviving more than five years, Amy discussed her care options with her oncologist who was trained in palliative care skills. 

“The team advised me but only advised me after they asked me what I wanted,” says Amy.

Together with her family, Amy decided to forego aggressive treatment and instead have her pain and the psychosocial symptoms of her disease handled by a palliative care team. Five and a half years after her diagnosis, Amy is active and fulfilled as ever, working full-time and traveling every chance she gets. 

“What palliative care gives to me is the ability to feel well and fully live my life in the face of serious illness,” says Amy. 

This is a story about making informed decisions. It’s also a story about putting the patient first. This is Amy's palliative care story.

Hosted by Dan Altano

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