In this video, actors portray family, patients, and clinicians to convey the challenges in delivering palliative care as well as presenting approaches to those challenges.

Initial publication: September 30, 2016
Last reviewed: March 18, 2021

Please visit: www.openpediatrics.org
 
OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.

For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu

"Palliative Care Clinical Vignette" by Dave Casavant for OPENPediatrics

In this episode Dr. McPherson interviews Dr. Susan Kristiniak who is the Associate Director for the University of Pennsylvania Health System in palliative care.

Episode 8 Dr. Lynn McPherson and Dr. Susan Kristiniak Aromatherapy Podcast

When we go into the hospital, we want to be treated for whatever is ailing us. We also expect to be heard and validated. 

When Toby Palma, a Las Vegas, Nevada woman in her early 40s, went into the emergency room several times complaining of severe pain all over her body, the doctors kept telling her it was a minor kidney infection.

“I knew it was something more,” says Toby. “The antibiotics they gave me weren’t doing anything for my pain but they kept sending me home because I looked healthy.” 

After a year of doctor’s visits which left her without answers or pain relief, Toby was eventually referred to a team of specialists who took the time to get a full understanding of her symptoms. That medical team—called a palliative care team—then went to work to help Toby with the pain and stress she was dealing with. With a better understanding of what was troubling her, Toby’s primary doctors were able to make a proper diagnosis of Multiple Sclerosis (MS). 

There is now one goal: To help Toby live the best life possible. This is Toby’s palliative care story.

Hosted by Dan Altano

A Quality Life: Toby's  Multiple Sclerosis Story

AI is being used to enhance and improve life in varied and often incredible ways. But what if we could use AI to improve the end of our lives, too? Our guest today is Anand Avati, a graduate student in the Artificial Intelligence Lab at Stanford University's Computer Science Department. Anand is co-author of a research paper entitled "Improving Palliative Care with Deep Learning" which details his team's use of a deep learning system to predict patient mortality with the aim of improving access to palliative care for critically-ill patients.

How AI Can Improve Access to Palliative Care

Ep. 47: How AI Can Improve Access to Palliative Care

GetPalliativeCare.org's podcast, A Quality Life, tells the real-life stories of people living with a serious illness, and their families. Each episode explores how palliative care specialists have helped to manage the symptoms and stress of their serious illness, and improve quality of life

A Quality Life: Toby's Multiple Sclerosis Story

Get Palliative Care

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