Pulmonary Fibrosis News Columnist and Forum Moderator Charlene Marshall reads an article summarizing a guidebook recently released by The National Alliance for Caregiving and Global Genes. 

This resource is written for caregivers from caregivers, with the hope of helping others know they aren’t alone. This comprehensive guidebook is free for caregivers and is called “The Circle of Care Guidebook for Caregivers of Children with Rare and/or Serious Illnesses”. 


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‘Not Alone in the Dark’: New Guide for, by Caregivers of Children With Rare Diseases

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