Although LGBTQ+ community members have the same rights as all other long-term care consumers, they often face hardship, such as discrimination and stigma, that their straight and cisgender counterparts do not. Even before entering long-term care, LGBTQ+ individuals are often concerned about whether the facility will accept them as who they are, and whether they will feel comfortable having partners and friends visit. LGBTQ+ older adults are less likely to have children to care for them and are more likely to live alone without a caretaker. Many LGBTQ+ older adults are not “out” because they fear discrimination.

In this episode, we are joined by Sherrill Wayland, Director of Special Initiatives at SAGE (Services and Advocacy for LGBTQ Elders), the largest organization improving the lives of LGBTQ+ older adults, advocating for the community since the 1970s. Sherrill discusses some of the challenges these residents face, what questions LGBTQ+ older adults should ask when comparing facilities, and best practices for facilities to train staff and maintain an inclusive community. Despite the challenges that exist, Sherrill shares some encouraging indicators of progress among facilities in states across the country. 

For resources for LGBTQ+ residents and support from the National Long-Term Care Ombudsman Resource Center, visit https://ltcombudsman.org/issues/lgbt-elders. To access SAGE resources for LGBTQ+ older adults, including its National LGBTQ+ Elder Hotline, visit www.sageusa.org.

Progress and Challenges for LGBTQ+ Residents in Long-Term Care Facilities

Residents' Rights Month is celebrated every October and this year’s theme, Amplify Our Voices, emphasizes a community of long-term care residents coming together to make their voices heard. 

As we lead into Residents’ Rights Month, Consumer Voice spoke with two State Ombudsmen, Kelly Richards (Illinois) and Mairead Painter (Connecticut), who shared their experiences of amplifying the voices of long-term care consumers in their advocacy work. 

In this episode, Kelly and Mairead discuss a variety of ways that long-term care consumers in their states have advocated to make positive change, including using the media, working with legislators, and sharing their personal experiences and stories. Kelly and Mairead also talked about actions Ombudsman program representatives can take to incorporate the voices of residents in their advocacy.

Amplifying the Voices of Long-Term Care Consumers Through Advocacy

For decades Consumer Voice has designated October as Residents’ Rights Month. This month is an opportunity to recognize the value of each resident and the importance of treating every resident with dignity and respect. This year’s theme, Amplify Our Voices, highlights residents coming together to make their voices heard. 

In this episode, join us as we speak with two resident advocates. Floyd Hartley is a former nursing home resident who now lives in the community and works as an advocate for all residents including those transitioning out of facilities. We also spoke with Cindy Napolitan, a current nursing home resident that has lived in two different nursing homes for over six years and has advocated for herself and others at the local, state, and federal level during that time. 

Floyd and Cindy discuss how they work to improve conditions for nursing home residents. Their constant effort and advocacy illustrate how residents can use their own voices to make systematic change for consumers in long-term care facilities.

Residents Amplify Their Voices for Change

M.T. Connolly is a writer, lawyer, researcher, policy-shaper, and leading national expert on elder justice. In her new book, The Measure of Our Age: Navigating Care, Safety, Money, and Meaning Later in Life, M.T. discusses the challenges of aging, how things go wrong, and presents powerful tools we can use to forge better long lives for ourselves, our families, and our communities. In this episode, join our discussion with MT Connolly as we talk about the challenges of aging well, ageism, and advocacy for a better long-term care system.

The Measure of Our Age - The Importance of Caring and Advocacy

Family caregivers have always played an integral role in promoting and achieving quality care for their loved ones living in a long-term care facility. The importance of the informal care and support provided by family members for a resident's physical, mental, and emotional well-being became abundantly clear during the pandemic when those essential supports were taken away during the pandemic. Yet, advocacy and engagement by family members benefits not only their own loved ones, but ultimately all residents in a long-term care facility. In our conversation with Marcella Goheen, a family member and advocate, we discuss how families can individually and collectively, through family councils, be a strong voice for quality and for change in nursing homes.

Family Caregivers and Family Councils: Essential Partners for Quality Care

Often the conversation about addressing the chronic poor care that exists in far too many of today's nursing homes is framed around new laws or regulations. Yet, there are steps that can be taken now - using existing federal and state legal authority - to improve care and conditions in our country's nursing homes. In our conversation, we will discuss four levers of opportunity for increasing quality and accountability in nursing homes with the author of "Using What We Have: How Existing Legal Authorities Can Help Fix America's Nursing Home Crisis." 

Special Guest: Nina Kohn, J.D., the Solomon Center Distinguished Scholar in Elder Law at Yale Law School, the David M. Levy Professor of Law at Syracuse University College of Law, and a leading authority in elder law and the civil rights of older persons.

How Existing Legal Authorities Can Help Fix America's Nursing Home Crisis

Since the pandemic began, there has been significant efforts by advocates to create better laws and regulations to protect nursing home residents. The pandemic and its devastating impact on nursing home residents has resulted in many states passing new laws or creating new regulations regarding a variety of areas, including staffing, transparency, and the nursing home workforce.

On this episode, you will hear from two advocates that have been successful in getting new laws and regulations passed and promulgated. Tony Chicotel, Senior Staff Attorney at California Advocates for Nursing Home Reform and Pam Walz, Supervising Attorney at Community Legal Services in Philadelphia, will discuss recent legislative and regulatory victories and how they helped ensure they were implemented.

Advocating for Better Nursing Home Laws and Regulations

Every April, organizations across the country take the time to celebrate and thank their volunteers. Volunteers are the backbone of many Long-term Care Ombudsman Programs (LTCOP). With the help of volunteers, the Ombudsman program can have a regular presence in facilities and stay in touch with residents. Volunteers lend their time, talent, and voice to make a difference in their communities and the LTCOP could not be its best without the volunteers who help carry out the mission of advocating for long-term care residents. 

In this episode, the National Ombudsman Resource Center (NORC) talks to a certified volunteer from New Jersey about her experience and dedicated advocacy. The Administration for Community Living (ACL) also joins to honor the over 4,000 people who serve as Long-Term Care Ombudsman volunteers. These specially trained volunteers visit nursing homes and residential care communities to advocate with and for the residents living there. By visiting on a regular basis, volunteers get to know residents and gain their trust to better assist them in resolving issues or complaints to help ensure they receive quality long-term care.

Guests: Beverley Laubert, National Ombudsman Program Coordinator, Office of Long-Term Care Ombudsman Programs, Administration for Community Living; Pat Murphy, Certified Volunteer Advocate, New Jersey Long-Term Care Ombudsman Program

Celebrating Volunteers in the Long-Term Care Ombudsman Program

The Centers for Medicare and Medicaid Service’s (CMS) new minimum staffing standard requires facilities to provide 3.48 hours of care per resident per day. That translates into three hours and 29 minutes of care over 24 hours for each resident. This number is lower than what Consumer Voice and other consumer advocates, nursing professionals, and nursing home residents have been advocating for, for years. This number is lower than what studies have shown, for decades, will keep nursing home residents safe, but it will still raise staffing levels at many facilities.

In this episode, you will hear an important conversation between four nursing home residents about their personal experiences with understaffing, their thoughts on the new minimum staffing standard released by CMS, and their plans for advocating for themselves and others moving forward. The residents in this conversation are all part of Consumer Voice’s Consumer Advisory Council and we are grateful they made the time to share their thoughts with us.

Special Guests:
•	Maurice Miller; Long-Term Care Resident in Maryland
•	Sharon Wallace, Long-Term Care Resident in New York
•	Cindy Napolitan Long-Term Care Resident in Texas
•	Margarite Grootjes, Long-Term Care Resident in Ohio

A Resident Dialogue on Staffing

In April 2024, a new federal rule requiring minimum staffing levels in nursing homes was released. This rule is an important step toward improving quality conditions in nursing homes and ensuring that residents receive the care they need. Listen in on a discussion between Consumer Voice's Lori Smetanka and Sam Brooks, who talk about the importance of the rule, what it says, and how we can start thinking about using it in advocating for quality care.

Understanding the Nursing Home Minimum Staffing Rule

Long-term care is or will be a fact of life for many of us and our loved ones as we age. We all deserve care – whether in the home or in a long-term care facility – that meets the highest of standards, enhancing quality of life and ensuring the protection of rights. Join us as we talk with national experts and advocates about strategies you can use in the pursuit of quality long-term care.

Progress and Challenges for LGBTQ+ Residents in Long-Term Care Facilities

Pursuing Quality Long-Term Care

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