Name: #8 - Interview With Wheelchair Rapunzel Founder Alex Dacy by SMA News Today in The Spinal Muscular Atrophy Podcast
Duration: 30 min 18 s
Description: In SMA News Today's 8th podcast, Community Editor Kevin Schaefer interviews Wheelchair Rapunzel Founder Alex Dacy. Visit the site here: https://www.wheelchairrapunzel.com

The Spinal Muscular Atrophy Podcast

In episode 147, host Kevin Schaefer talks with Brandi Lewis from Birmingham, Alabama. A blood disorder awareness educator, TEDx speaker, writer, and nonprofit founder, Brandi is passionate about helping others diagnosed with chronic illnesses. She herself has been diagnosed with aplastic anemia and PNH, the symptoms of which began in 2009. Her nonprofit, Brandi’s Blessings, was created to spread awareness and support blood disorder patients. She notes that her greatest accomplishment is having saved three lives by encouraging people to register to become bone marrow donors. Brandi is a dog lover of a labradoodle, Milo, and thinks laughter is the best medicine. 

Follow Brandi on Instagram at @_brandilewis_!

Brandi’s website: www.brandilewis.com
Brandi’s column: https://pnhnews.com/category/columns/from-fear-to-fighter-a-column-by-brandi-lewis/

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To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums.

#147: Brandi Lewis, rare disease advocate and speaker

In episode 148, host Kevin Schaefer talks with Ashley Fox and Madeline Engel from California. Ashley has SMA, and Madeline became her best friend and caregiver when they were in college. They discuss the nuances of friendship and caregiving, plus touch on confronting internalized ableism and navigating graduate school and careers.

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To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums

#148: Ashley Fox and Madeline Engel discuss friendship and caregiving

In SMA News Today's first podcast, Community Editor Kevin Shaefer interviews Christine Getman Director of the organization Magic Wheelchair. She talks about her work at Magic Wheelchair, experiences with Spinraza, and living with and overcoming the challenges of spinal muscular atrophy type 2.

#1 - Interview With Christine Getman of Magic Wheelchair

SMA News Today Community Editor Kevin Schaefer interviews author Ben Mattlin. His new book, "In Sickness and in Health: Love, Disability, and a Quest to Understand the Perils and Pleasures of Inter-abled Romance." Ben has written for the New York Times, Washington Post, Financial Advisor, and appeared on NPR. Read more about his work at http://www.benmattlin.com.

#2 - Interview With Author Ben Mattlin

In SMA News Today's third podcast, Community Editor Kevin Schaefer interviews Josh Garrison -- a person with SMA type 2 who works as an operations manager for Amazon. Josh discusses his work at Amazon, how he adapts and navigates around SMA in his career, how live on his own, his inter-abled relationship with his Fiancee, and tips on how people with SMA can live and work independently.

#3 - Interview with Amazon Operations Manager Josh Garrison

SMA News Today Community Editor interviews Dr. Danielle Sheypuk. Danielle is a renowned clinical psychologist with SMA who focuses her research on SMA and dating.

#4 - Interview With Dr. Danielle Sheypuk

In SMA News Today's fifth podcast, Community Editor Kevin Schaefer interviews Brynne Willis. Brynne is a graduate student at Johns Hopkins University where she is studying the psychological effects of living with SMA. Listen to her talk about her work, perspectives on living with SMA, and other amazing insights into the SMA community, which she describes as " . . . some of the most positive, resilient, and tenacious people I have ever met.”

#5 - Interview With Brynne Willis, Johns Hopkins University Graduate Student

In SMA News Today's 8th podcast, Community Editor Kevin Schaefer interviews Wheelchair Rapunzel Founder Alex Dacy. Visit the site here: https://www.wheelchairrapunzel.com

#8 - Interview With Wheelchair Rapunzel Founder Alex Dacy

Daily, digital coverage of the latest SMA news and perspectives.

#8 - Interview With Wheelchair Rapunzel Founder Alex Dacy

SMA News Today

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