Name: #21 - Roundtable Discussion Of AVXS - 101 by SMA News Today in The Spinal Muscular Atrophy Podcast
Duration: 27 min 38 s
Description: SMA News Today Community Editor Kevin Schaefer and Forums Director Michael Morale discuss AveXis' filing for FDA approval of experimental small therapy AVXS-101.

The Spinal Muscular Atrophy Podcast

In SMA News Today's first podcast, Community Editor Kevin Shaefer interviews Christine Getman Director of the organization Magic Wheelchair. She talks about her work at Magic Wheelchair, experiences with Spinraza, and living with and overcoming the challenges of spinal muscular atrophy type 2.

#1 - Interview With Christine Getman of Magic Wheelchair

SMA News Today Community Editor Kevin Schaefer interviews author Ben Mattlin. His new book, "In Sickness and in Health: Love, Disability, and a Quest to Understand the Perils and Pleasures of Inter-abled Romance." Ben has written for the New York Times, Washington Post, Financial Advisor, and appeared on NPR. Read more about his work at http://www.benmattlin.com.

#2 - Interview With Author Ben Mattlin

In SMA News Today's third podcast, Community Editor Kevin Schaefer interviews Josh Garrison -- a person with SMA type 2 who works as an operations manager for Amazon. Josh discusses his work at Amazon, how he adapts and navigates around SMA in his career, how live on his own, his inter-abled relationship with his Fiancee, and tips on how people with SMA can live and work independently.

#3 - Interview with Amazon Operations Manager Josh Garrison

SMA News Today Community Editor interviews Dr. Danielle Sheypuk. Danielle is a renowned clinical psychologist with SMA who focuses her research on SMA and dating.

#4 - Interview With Dr. Danielle Sheypuk

In SMA News Today's fifth podcast, Community Editor Kevin Schaefer interviews Brynne Willis. Brynne is a graduate student at Johns Hopkins University where she is studying the psychological effects of living with SMA. Listen to her talk about her work, perspectives on living with SMA, and other amazing insights into the SMA community, which she describes as " . . . some of the most positive, resilient, and tenacious people I have ever met.”

#5 - Interview With Brynne Willis, Johns Hopkins University Graduate Student

SMA News Today Community Editor Kevin Schaefer and Forums Director Michael Morale discuss AveXis' filing for FDA approval of experimental small therapy AVXS-101.

#21 - Roundtable Discussion Of AVXS - 101

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Daily, digital coverage of the latest SMA news and perspectives.

#21 - Roundtable Discussion Of AVXS - 101

SMA News Today

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