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Andrea Titti intervista il Presidente dell'Unione Italiana Ciechi ed Ipovedenti di Roma e Provincia Giuliano Frittelli sul tema del servizio di trasporto punto a punto per i disabili assente nell'area metropolitana di Roma

Disabili discriminati due volte in Provincia di Roma

Torna sul sagrato della Cattedrale di Palermo, sabato 11 maggio 2024, “Se ognuno fa qualcosa… con te voglio crescere”, la quarta edizione della giornata per l’inclusione sociale attraverso la rete realizzata da numerose realtà del Terzo Settore. L’evento, coordinato dal Servizio diocesano per la Pastorale per le Persone con Disabilità (in collaborazione con diversi uffici diocesani), nasce dalla constatazione che il frammentato settore delle associazioni che si occupano di fragili (“Se ognuno fa qualcosa” riguarda ogni tipo di fragilità, non solo la disabilità) è in grado di creare un lavoro di rete e far sperimentare alla comunità civile ed ecclesiale che “sebbene ci siano alberi che fragorosamente cascano, c’è tuttavia una foresta che cresce; e poi, la nostra Chiesa ama teneramente tutti ed è realmente inclusiva”.

La Giornata prevede stand, animazione e diversi momenti di confronto. Alle 16.00 sarà presente l’Arcivescovo di Palermo Mons. Corrado Lorefice che alle 18.00 presiederà la Celebrazione Eucaristica in Cattedrale.

Cattedrale di Palermo

Omelia S. Messa IV edizione della giornata per l'inclusione sociale con la rete del Terzo Settore

In this Complex Care Journal Club podcast episode, Dr. Sarah Sobotka discusses a mixed-methods study with longitudinal assessment of neurodevelopmental profiles of children requiring mechanical ventilation after hospital discharge and perceived influences on development. She describes lessons learned while designing and performing the study, the need for dedicated therapeutic strategies for this patient population, and next steps from this work.

SPEAKER
Sarah Sobotka, MD, MSCP
Assistant Professor
Section of Developmental and Behavioral Pediatrics, Department of Pediatrics,
University of Chicago

HOST
Kilby Mann, MD
Assistant Professor
Pediatric Rehabilitation Medicine
Children's Hospital Colorado

DATE
Initial publication date: June 10, 2024.

JOURNAL CLUB ARTICLES
Sobotka SA, Lynch E, Liao C, Graham RJ, Msall ME. Autism and neurodevelopmental disability risks in children with tracheostomies and ventilators. Pediatr Pulmonol. 2024 Mar 1. doi: 10.1002/ppul.26921. Epub ahead of print. PMID: 38426806.

Sobotka SA, Lynch E, Msall ME, Graham RJ. Early childhood developmental skills of children with tracheostomies and ventilators recently discharged home. Pediatr Pulmonol. 2023 Mar;58(3):853-865. doi: 10.1002/ppul.26265. Epub 2022 Dec 28. PMID: 36448249; PMCID: PMC10680148.

TRANSCRIPT

Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: https://forms.gle/Bdxb86Sw5qq1uFhW6

Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu

CITATION
Sobotka SA, Mann K. Need for Neurodevelopmental Follow-up for Children with Invasive Mechanical Ventilation. 6/2024. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/need-for-neurodevelopmental-follow-up-for-children-with-invasive-mechanical-ventilation

Need for Neurodevelopmental Follow-up for Children with Invasive Mechanical Ventilation

Uno strumento per conoscere la vita della Chiesa palermitana ed il Magistero del suo Arcivescovo, Mons. Corrado Lorefice. La pagina è pensata per un coinvolgimento attivo dei visitatori e come “Testimonianza digitale” di ciascuno degli uffici diocesani.
“Attraverso questa pagina si intende favorire ulteriormente la Comunicazione della Chiesa diocesana con le persone e definire uno stile e un’immagine adeguati in connessione con la Chiesa universale”. E' curata dagli uffici per le Comunicazioni Sociali ed Informatico.

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