Learn about your responsibilities and rights under the federal Family Medical Leave Act with attorney, Christopher Mills.

Living with PNH: The Family Medical Leave Act

Attorney Christopher Mills explains to patients the rights and responsibilities of The Americans with Disabilities Act.

Understanding The Americans with Disablities Act

Dr. Bart Scott explains how the approval for the oral medication, Fabhalta, or iptacopan, may be beneficial for particular patients with PNH

Learn about newly approved oral medication for patients with PNH

Evan was biking 20 miles each day, when his dad noticed physical changes. The diagnosis: PNH, or paroxysmal nocturnal hemoglobinuria.  Listen to Evan describe his journey with this rare disease in this episode of Podcast for Patients.

Athlete's life is turned upside-down by diagnosis of PNH: Evan's story

AAMDSIF Director of Patient Services, Leigh Clark, asks Mario about his journey with Aplastic Anemia.  The conversation includes treatment and survivorship.

Conversation with patient, Mario Rivera: His Experience with Aplastic Anemia

Dr. Roma Rajput explains the origins and treatment of hepatitis-associated Aplastic Anemia in this AAMDSIF Podcast for Patients Episode.

Hepatitis-Associated Aplastic Anemia with Dr. Roma Rajput

Damian describes his story of diagnosis, treatment, and bone marrow transplant in this compelling episode.

Athletic Service Member Conquers Aplastic Anemia and MDS with Transplant

Dr. Carlos De Castro describes the use of this medication for patients with PNH.  Listen now.
For more podcast episodes like this, please visit aamds.org/podcast-episodes  (https://www.aamds.org/education/podcast-episodes)

New Drug Approval for PNH Patients - PiaSky

Pain. 
Blood Clots.
Diagnosis.
Listen to Shane describe his journey to diagnosis, then to ongoing, successful, treatment in this recent episode.  He will inspire you to advocate for yourself, and to keep focused on your needs.
To listen to more podcast episodes, please subscribe on Apple Podcasts, Google Play, SoundCloud, Spotify, or listen on the AAMDSIF website here: https://www.aamds.org/education/podcast-episodes.

Podcast for Patients:  In Treatment for PNH -  Shane's Story

"Podcasts for Patients" from the Aplastic Anemia and MDS International Foundation features interviews with Bone Marrow Failure Specialists and Patients

For more, see our podcast page at:  https://www.aamds.org/podcast/

New tracks tagged #marrowfailure