After struggling with shortness of breath for many years, Betsy was referred to a special lung care clinic. Worsening symptoms limited her ability to remain active, which in turn led to anxiety and depression. She struggled to care for her home and visit with friends; and felt like a burden to her husband. Betsy’s world was getting smaller. 

At the lung care clinic, she met Dr. Patty Fogelman, doctor of nursing practice – who is trained to treat lung disease and as a palliative care provider. At the time, Betsy, a retired nurse, didn’t have an in-depth understanding of palliative care. In the years to come, she and her husband, and their family learned how palliative care manages many symptoms, and eases the many burdens faced by those living with serious illnesses. It also meant that Betsy learned new ways to enjoy her life.

This is Betsy’s palliative care story.

A Quality Life: How Palliative Care Helps You Live Well with Serious Lung Disease

In this video, actors portray family, patients, and clinicians to convey the challenges in delivering palliative care as well as presenting approaches to those challenges.

Initial publication: September 30, 2016
Last reviewed: March 18, 2021

Please visit: www.openpediatrics.org
 
OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children's Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access-and thus at no expense to the user.

For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu

"Palliative Care Clinical Vignette" by Dave Casavant for OPENPediatrics

In this episode Dr. McPherson interviews Dr. Susan Kristiniak who is the Associate Director for the University of Pennsylvania Health System in palliative care.

Episode 8 Dr. Lynn McPherson and Dr. Susan Kristiniak Aromatherapy Podcast

AI is being used to enhance and improve life in varied and often incredible ways. But what if we could use AI to improve the end of our lives, too? Our guest today is Anand Avati, a graduate student in the Artificial Intelligence Lab at Stanford University's Computer Science Department. Anand is co-author of a research paper entitled "Improving Palliative Care with Deep Learning" which details his team's use of a deep learning system to predict patient mortality with the aim of improving access to palliative care for critically-ill patients.

How AI Can Improve Access to Palliative Care

Ep. 47: How AI Can Improve Access to Palliative Care

GetPalliativeCare.org's podcast, A Quality Life, tells the real-life stories of people living with a serious illness, and their families. Each episode explores how palliative care specialists have helped to manage the symptoms and stress of their serious illness, and improve quality of life

A Quality Life: How Palliative Care Helps You Live Well with Serious Lung Disease

Get Palliative Care

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