Estela was diagnosed with a progressive neuropathy called Charcot-Marie-Tooth (CMT) at four years old, followed by her younger sister two years later.

In 2002, she graduated from FIT with a Bachelor’s in Interior Design. Today, her professional background in design, marketing, trend forecasting, and creative direction brings an unexpected approach to connecting the disability community to wellness, empowerment, and health. 

After volunteering for eight years, Estela joined the Hereditary Neuropathy Foundation full-time in 2018 as their Program Development Manager. Later in 2018, she testified in front of the FDA on the patient experience and the importance of funding CMT studies and potential therapies.

As moderator for the CMT-Connect webinar series, Estela enjoys sharing resources and expert information with the CMT community on various valuable topics. On the EmBrace It Podcast, she interviews community thought leaders and aims to empower women living with disabilities in all facets of life. Estela and co-host Lainie Isbia also provide original inclusion workshops focusing on improving advocacy & DEI through communication tools, starting with “How to Communicate with Anyone About Disability.” They’ve worked with many top brands, such as Levi Strauss, Pinterest, Lockheed Martin, The Abilities Expos, SUNY Farmingdale College, Health Union, and more.

In 2019, Estela gave her first TEDx talk titled “RePurpose Your Pain” on turning adversity into life’s most beautiful work. She co-teaches inclusive and adaptive design at the Fashion Institute of Technology for their Design for Social Impact program. Estela is represented by Gamut Management, an all-inclusive talent agency.

Estela Lugo, patient advocate

alzmoZ - stfrr. (даня беликов)

alzmoZ - Просто Так

alzmoZ - disa.2

alzmoZ - disa.

alzmoZ - Bad Bunny FREESTYLE

Disa & Choir of the Dwarves - The Dark Mine

"The Dark Mine" is a haunting exploration of the depths—both literal and metaphorical—where the human spirit grapples with struggle, fear, and the pursuit of hope. The song begins by immersing listeners in the foreboding atmosphere of a subterranean world, where shadows flicker and whispers echo in the dark. As the verses unfold, vivid imagery of labor and toil paints a picture of the physical and emotional toll taken by life’s hardships.

The chorus captures the relentless determination to persevere, emphasizing the feeling of being trapped in a cycle of struggle yet finding solace in companionship amidst the darkness. The third verse introduces a poignant reflection on the sorrow and weight of existence, while the bridge instills a sense of bravery and resilience as the characters navigate through their fears in search of a flicker of light.

In the final verse, the concept of home shifts dramatically; the dark mine becomes both a refuge and a prison, symbolizing the choices we make and the battles we face in the pursuit of dreams. Overall, "The Dark Mine" resonates with themes of survival, camaraderie, and the bittersweet nature of hope, making it a compelling anthem for those who find themselves navigating their own dark places.

© 2024 Grinsekatze Miau

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Disa - The Dark Mine

SYS 2nd single "DisA" 2011/10/12 Released.

AsiD

decode

encode

“Ho chiesto aiuto a dio, ma tu sei piú vicino”

Prod. Disa

CERCAMI SE PUOI

On the show this time, it’s the danceable darkwave of Danish musician - Trentemøller.  His latest is Dreamweaver, featuring the Icelandic singer Disa, available on In My Room records.


Live on KEXP, Episode 487 - Trentemøller

R&B, pop e hip hop indipendente da Gran Canaria.

Scrivo per elaborare, per dare forma a quello che non riesco a dire. La tristezza diventa qualcos'altro.

The Health Design Podcast brought to you by the Journal of Health Design(www.journalofhealthdesign.com). Features interviews with the world's leading health design experts including clinicians, designers, patients, authors and researchers. Better health by design.

New tracks tagged #DisA