In this special Complex Care Journal Club podcast episode, co-hosts Emily Goodwin, Kristie Malik, and Kathleen Huth interview presenters of posters and oral abstracts relevant to the care of children with medical complexity at the Pediatric Academic Societies (PAS) 2025 annual meeting. Speakers describe the implications of their study findings, messages for patients and families, and priority areas for research that they hope can be investigated further by the complex care community in the coming years.

SPEAKERS
Lucas Bruton, MD, MEd
Instructor of Pediatrics
Northwestern University

Hannah Lane, PhD, MPH
Assistant Professor
Duke  School of Medicine

Jennifer B. Peralta, MD, MSHPM, MS
Health Sciences Clinical Instructor
UCLA Department of Pediatrics
David Geffen School of Medicine

Amy Porter, MD, PhD
Physician-Investigator, Instructor
Mass General for Children
Massachusetts General Hospital
Harvard Medical School

Elaina Schueler, BA
Clinical Research Coordinator
Medical College of Wisconsin

Rebecca Steuart, MD, MS
Assistant Professor of Pediatrics
Medical College of Wisconsin
 
Aditi Vasan, MD, MSHP
Assistant Professor of Pediatrics
University of Pennsylvania and Children's Hospital of Philadelphia

Peter Walsh, BA
Behavioral Research Coordinator
Ann and Robert H. Lurie Children's Hospital of Chicago

HOSTS
Kristina Malik, MD
Assistant Professor of Pediatrics,
University of Colorado School of Medicine
Medical Director, KidStreet
Pediatrician, Special Care Clinic,
Children's Hospital Colorado

Emily J Goodwin, MD
Clinical Associate Professor of Pediatrics, 
University of Missouri-Kansas City School of Medicine
Pediatrician, General Academic Pediatrics Beacon Program, 
Children’s Mercy Kansas City

Kathleen Huth, MD, MMSc
Pediatrician, Complex Care Service, Division of General Pediatrics
Boston Children's Hospital
Assistant Professor of Pediatrics
Harvard Medical School

DATE
Initial publication date: May 12, 2025.

REFERENCE
Pediatric Academic Societies. Who we are. Accessed April 29, 2025. https://www.pas-meeting.org/about/

TRANSCRIPT
https://cdn.bfldr.com/D6LGWP8S/at/ng43ccschnbg2vfnp9wq7v5h/CCJCP_May_Conference_5-9-25.pdf

Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: forms.gle/Bdxb86Sw5qq1uFhW6n using this form: forms.gle/Bdxb86Sw5qq1uFhW6

Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu

CITATION
Goodwin EJ, Malik K, Bruton L, Lane H, Peralta JB, Porter AS, Schueler E, Steuart R, Vasan A, Walsh P﻿, ﻿﻿﻿Huth K. Practice-Changing Research in Complex Care at the Pediatric Academic Societies 2025 Annual Meeting. 5/2025. OPENPediatrics. Online Podcast.

Practice-Changing Research in Complex Care at the Pediatric Academic Societies 2025 Annual Meeting

Cal-TASH Exec Board Member Eileen Medina shares all about Cal-TASH, micro-businesses for a person with a disability, parenting, person centered planning and more!

05-13-25 Cal-TASH Exec Board Member Eileen Medina

Maeng Hyo-shim was born and raised in North Korea before she and her family defected in 2018. She graduated from high school in South Korea and is currently attending Seoul Women's University. She works to raise awareness within the international community about the human rights situation in North Korea and was recently interviewed by NHK on the situation people with disabilities face in North Korea.

Episode Notes:

‘Defector spotlights disability struggles in N.Korea’ (Original NHK Interview):

https://www3.nhk.or.jp/nhkworld/en/news/videos/20250508215833707/


Defector Talks About Stigma People with Disabilities Experience in North Korea

Peter Brown, a 17-year-old Black teen with cognitive disabilities facing adult criminal charges for alleged teacher assault, reveals systemic justice failures impacting special needs youth and Black communities, sparking demands for equitable mental health care and criminal justice reform.

Cruel Adult Justice For Special Needs Teen

In late march 2025 the Co-operatives Federation of Australia held their assembly, or conference.
Align in the Sound was there to have a short yarn with many of the very diverse Co-ops who were present.
Here is one now!


3 This Co-operative Life - Rafaelle CF25

In the wake of three employees being arrested by the Tokyo Metropolitan Police for luring a man they met through a matching app to a restaurant in Shibuya, Tokyo, forcing him to pay 1.1 million yen in cash and other charges in a scam; a man in his 20s who was a victim of the “rip-off” scam by the recently arrested group spoke to NHK. The man has a level two visual impairment and usually uses a white cane when walking outside.

Episode Notes:

‘Japan’s Disability Dating App Scammers: Man with Visual Impairment Speaks Out’:

https://barrierfreejapan.com/2025/05/17/japans-disability-dating-app-scammers-man-with-visual-impairment-speaks-out/


Japan’s Disability Dating App Scammers: Man with Visual Impairment Speaks Out

Kirsty Corbett chats with the solo performer of "I am penguin", Hamza, plus his director Amy about Hamza's journey from Syria, through two refugee camps to touring internationally with a show all about Hamza's life as a disabled refugee and the joy he's been able to create from it.

Kirsty Corbett chats with the creative team of "I am penguin"

Neal Forster chats with Kirsty about how he set up one of the newer groups of Derbyshire Open Arts in Stanton by Dale. Find out what to expect at this weekends annual event (24 - 26 May 2025)

Kirsty Corbett chats with Neal Forster from Derbyshire Open Arts

Your intelligence stopped at the third grade of elementary school" -- the rapper and comedian from ‘Sapporo’s Gag Man’ from Sapporo, (28), was told these shocking words by a teacher in the summer of his first year of junior high school. He was diagnosed with intellectual disability and panic disorder. How did his life change after his disability was discovered? Here is an excerpt from his new book, "Not Normal: Why I'm a Rapper, Even though My Intelligence Stopped in Third Grade.”

Episode Notes:

‘ “Your intelligence stopped at the third grade of elementary school” Sapporo rapper (28) with an intellectual disability writes about “the sadness of living as a disabled person” ’:

https://barrierfreejapan.com/2025/05/19/your-intelligence-stopped-at-the-third-grade-of-elementary-school-sapporo-rapper-28-with-an-intellectual-disability-writes-about-the-sadness-of-living-as-a-disabled-person/



Japanese Rapper with Intellectual Disabilities ‘Sapporo Gag Man’ Talks About “the sadness of living as a disabled person”

Look Ma, No Hands - Gabrielle Drolet

A weekly show about navigating life in the world of disabilities. We bring you resources, top experts, stories and more!

Love Music - Love Erewash: Erewash Sound is the local radio station for the Derbyshire borough of Erewash, run by local people from studios in Ilkeston.

Our 'Listen Again' service is powered-by SoundCloud, meaning you never need to miss what's happening on your doorstep with interviews, features and shows available for you to listen to whenever it suits you.

You can find our live broadcasts 24/7 on 103.5 and 96.8 FM, online at erewashsound.com, on our free to download app and on your smartspeaker - ask it to "Play Erewash Sound".

Align in the Sound is a podcast combining audio from three sources:
 - Radio Behind the Lines
 - The New Economy Network of Australia
 - Co-ops Commons and Communities Canberra.

Radio Behind the Lines (BTL) has been going to air every week on Community Radio 2XX 98.3FM in Canberra, Australia for over 30 years. We talk with anyone who is trying to make the world a better place. 
The New Economy Network of Australia (NENA) was conceived in 2016. NENA is an Australian Co-operative which aims to bring together people around the continent who are creating and thinking about a new economy which serves people and planet, and amplify the fantastic work already being done. BTL has recorded 3 of their national conferences, which can be found here.
Co-operatives, Commons and Communities Canberra (CoCanberra) is building the new economy in Canberra, Australia, through the creation of “Climate Co-ops”.
This means you will continue to hear the eclectic mix of interviews and field recordings from Behind the Lines, mixed up with snapshots of what NENA’s various hubs and people are up to, various conferences, and recordings from the regular meetups of CoCanberra.
Use the playlists to browse through our archive to discover interviews, rallies, lectures and more from all sorts of people who are trying to make the world a better place, and many recordings from the NENA conferences.

Thanks to Jacopo Werther [CC BY-SA 3.0 (https://creativecommons.org/licenses/by-sa/3.0)] for the Romanesco Broccoli natural fractal photo. Find the original at https://commons.wikimedia.org/wiki/File:Romanesco_Broccoli_detail_-_(1).jpg
Enjoy!
The Align in the Sound team.

Hosted by Michael Gillan Peckitt, who resides in Kobe, Japan, the Disability News Japan Podcast is News website 'Barrier Free Japan's podcast, a weekly digest of some of the news about disability in Japan in audio form. New episodes will usually available every Friday at 6am Japan Time.

New tracks tagged #disability