In this special Complex Care Journal Club podcast episode, co-hosts Kristie Malik, Emily Goodwin and Kathleen Huth interview presenters of posters and oral abstracts relevant to the care of children with medical complexity at the Pediatric Academic Societies (PAS) 2024 annual meeting. Speakers describe the implications of their study findings, messages for patients and families, and priority areas for research that they hope can be investigated further by the complex care community in the coming years.

SPEAKERS
Mary Arakelyan, MPH
Research Project Manager
Dartmouth Health Children's
 
Tammie Dewan, MD, MSc
Clinical Assistant Professor
Department of Pediatrics, University of Calgary
Pediatrician, Alberta Children's Hospital
 
Caleb Easterly, BA
MD/PhD Student
University of North Carolina School of Medicine
 
Kevin Huynh, MS
Medical Student
University of Pittsburgh School of Medicine
 
Ruchi Kaushik, MD, MEd, MPH
Medical Director of Education and Research
Imagine Pediatrics, Houston TX
 
Joanna Leyenaar, MD, PhD
Professor, Department of Pediatrics
Dartmouth Health Children's﻿
 
Savithri Nageswaran, MD, MPH
Professor, Department of Pediatrics
Wake Forest University School of Medicine
 
Julia Reedy, MA
Qualitative Analyst
ACCORDS, University of Colorado

S. Margaret Wright, MD, MPH
Clinical Assistant Professor of Pediatrics
University of Missouri-Kansas City School of Medicine

Justin Yu, MD, MS
Assistant Professor of Pediatrics
UPMC Children’s Hospital of Pittsburgh

HOSTS
Kristina Malik, MD
Pediatrician, Special Care Clinic,
Children's Hospital Colorado

Emily J Goodwin, MD
Pediatrician, General Academic Pediatrics Beacon Program
Children’s Mercy Kansas City

Kathleen Huth, MD, MMSc
Pediatrician, Complex Care Service, Division of General Pediatrics
Boston Children's Hospital

DATE
Initial publication: May 15, 2024.

REFERENCES
Fehlings D, Agnew B, Gimeno H, Harvey A, Himmelmann K, Lin JP, Mink JW, Monbaliu E, Rice J, Bohn E, Falck-Ytter Y. Pharmacological and neurosurgical management of cerebral palsy and dystonia: Clinical practice guideline update. Dev Med Child Neurol. 2024 Apr 19. doi: 10.1111/dmcn.15921. Epub ahead of print. PMID: 38640091. 

Pediatric Academic Societies. Who we are. Accessed May 6, 2024. https://www.pas-meeting.org/about/

TRANSCRIPT


Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: forms.gle/Bdxb86Sw5qq1uFhW6

Please visit: www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open access, thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu

CITATION
Malik K, Goodwin EJ, Arakelyan M, Dewan T, Easterly C, Huynh K, Kaushik R, Leyenaar J, Nageswaran S, Reedy J, Wright SM, Yu J, Huth K. Practice-Changing Research in Complex Care at the Pediatric Academic Societies 2024 Annual Meeting. 5/2024. OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/practice-changing-research-in-complex-care-at-the-pediatric-academic-societies-2024-annual-meeting

Practice-Changing Research in Complex Care at the Pediatric Academic Societies 2024 Annual Meeting

In this Complex Care Journal Club podcast episode, Ms. Kathryn Knight and Dr. Brian K. Jordan discuss a national survey of families of children with medical complexity on access to home health nursing. They describe the impact of the nursing shortage on families, development of a nonprofit resource that facilitates connections between families and home nursing, and outline next steps from this work.

Learn more about Hello Nurze: www.hellonurze.com
Find additional details about the F.A.C.E.S. Project: www.hellonurze.com/p/faces-project

SPEAKERS
Kathryn Knight, BBA
Co-Founder & Executive Director, Hello Nurze

Brian K. Jordan, MD, PhD
Associate Professor
Oregon Health & Science University

HOST
Emily J. Goodwin, MD
Clinical Associate Professor of Pediatrics
University of Missouri Kansas City School of Medicine
Pediatrician, General Academic Pediatrics Beacon Program
Children’s Mercy Kansas City

DATE
Initial publication date: September 8, 2025.

JOURNAL CLUB ARTICLE
Knight K, Knight G, Jordan BK. The Impact of the Lack of Access to Home Health Nursing on Families of Children with Medical Complexity in the United States. Home Healthc Now. 2025 Jul-Aug 01;43(4):213-220. doi: 10.1097/NHH.0000000000001356. Epub 2025 Jul 7. PMID: 40619624.

OTHER ARTICLES REFERENCED
Baker CD, Martin S, Thrasher J, Moore HM, Baker J, Abman SH, Gien J. A Standardized Discharge Process Decreases Length of Stay for Ventilator-Dependent Children. Pediatrics. 2016 Apr;137(4):e20150637. doi: 10.1542/peds.2015-0637. Epub 2016 Mar 10. PMID: 26966133; PMCID: PMC4811306.

Hello Nurze. Connecting families and in-home nurses. Accessed August 27, 2025. https://www.hellonurze.com

Moore PE, Boyer D, O'Connor MG, Baker CD, Rettig JS, Sterni L, Halbower A, Wilson KC, Thomson CC. Pediatric Chronic Home Invasive Ventilation. Ann Am Thorac Soc. 2016 Jul;13(7):1170-2. doi: 10.1513/AnnalsATS.201603-196CME. PMID: 27388405; PMCID: PMC5462000.

TRANSCRIPT
https://cdn.bfldr.com/D6LGWP8S/as/87x9cmw5xfnkkt74v5g5pv3/Jordan_and_Knight_Final_Transcript__9-5-25‌

Clinicians across healthcare professions, advocates, researchers, and patients/families are all encouraged to engage and provide feedback! You can recommend an article for discussion using this form: https://forms.gle/Bdxb86Sw5qq1uFhW6.

Please visit: http://www.openpediatrics.org OPENPediatrics™ is an interactive digital learning platform for healthcare clinicians sponsored by Boston Children’s Hospital and in collaboration with the World Federation of Pediatric Intensive and Critical Care Societies. It is designed to promote the exchange of knowledge between healthcare providers around the world caring for critically ill children in all resource settings. The content includes internationally recognized experts teaching the full range of topics on the care of critically ill children. All content is peer-reviewed and open-access thus at no expense to the user. For further information on how to enroll, please email: openpediatrics@childrens.harvard.edu

CITATION
Knight K, Jordan BK﻿﻿, Goodwin EJ. From Crisis to Connection: Matching Families with Home Nursing Support in Complex Care. 09/2025. ﻿OPENPediatrics. Online Podcast. https://soundcloud.com/openpediatrics/from-crisis-to-connection-matching-families-with-home-nursing-support-in-complex-care.

New tracks tagged #home nursing