INTERACTION 116 p2 Thank you!

The theme of this year's World ME Day was #BeAGlobalVoiceForME.

INTERACTION 116 p4 World ME Day - Be a #GlobalVoiceForME

An interview with Sian Leary, who tells us more about the World ME Alliance.

INTERACTION 116 p5 Breaking down barriers - the World ME Alliance

Two items

1. Our parliamentary champions network
2. Update on delivery plan

NOTE
Owing to the announcement of a General Election, we are aware that this causes concern in the ME community.  You can read our initial statement here: 

https://www.actionforme.org.uk/news/general-election-what-happens-now/

INTERACTION 116 p8 NEWS - Parliamentary Champions and Delivery Plan

Two news items:
1. Remembering Keith Anderson, ME Nurse Consultant in Fife, Scotland, who died in October 2023
2. Learn About ME -
The podcast series (www.buzzsprout.com/1717775)
and competition for medical students in Scotland

INTERACTION 116 p9 NEWS - remembering Keith Anderson / Learn About ME

Information on new and updated resources: 
*Guidance on supporting evidence (for welfare benefits assessments)
*Resources for children and families social work
*Self-advocacy for those in hospital

INTERACTION 116 p13 RESOURCES - Knowledge is power

The completion date for the study has been extended to August 2025, the DecodeME team explain.

For more information and updates:
www.decodeme.or.g.uk/blog

INTERACTION 116 p14 RESEARCH DecodeME extension

A new programmatic partnership looks to improve diagnosis and treatment for those with Long Covid and ME (LOCOME)

INTERACTION 116 p15 RESEARCH Seeking genetic insights

Diane Shortland summarises her recent review on how people with ME use the internet, as part of her continuing research.

The full review can be found here:
tinyurl.com/MEOnlineSupport

INTERACTION 116 p16  Can online social support improve your life

Ezra Angel has raised over £1500 for Action for ME, on behalf of sibling Mi, who has ME.  Ezra completed the Bath Half marathon in March.

INTERACTION 116 p16 FUNDRAISING Raising awareness for those with ME

Blue Sunday, founded by Anna Redshaw, has raised over £100,000 for ME charities around the world. This year it took place on Sunday 19 May. 

INTERACTION 116 p17 Blue Sunday 2024

In this feature from Carers UK, Jo Body shares the story of caring for her mother, who has ME and fibromyalgia.

INTERACTION 116 p22 Caring for someone with ME - Joy's story

Ellen Siegert has had ME since she was 13. Her passion for making crocheted 'minis' has developed from a therapeutic outlet to her own manageable mini business. www.crazyhippocrochet.com

INTERACTION 116 p24 ME and the minis

Amy Arthur reflects on what life is like when you're chronically ill and autistic. 

INTERACTION 116 p26 Diving Deep - life with autism and ME

INTERACTION 116 p30 Rose's Diary

We hear from three writers - Pippa tells us how she manages the writing process as a person with ME, Stoo tells us about an online group called 'Pillow Writers', and Debi shares her experience of going on a tutor led residential editing workshop.

INTERACTION 116 p31 Cultivating Creativity

INTERACTION 116 p34 Reaction

INTERACTION 116 p38 Noticeboard

Please note: To listent to the current issue of InterAction, our magazine for Supporting Members, requires a members-only link.

Need information or support about any aspect of living with ME? Call us on 0117 927 9551 or visit www.actionforme.org.uk

New tracks tagged #pwme