February 10, 2023. Rebecca Alexander — a psychotherapist, keynote speaker, author, fitness instructor, and disability rights advocate — talks candidly with host Ben Shaberman about her journey with Usher syndrome. Reflecting on her own experiences, she discusses how people with vision loss and their loved ones can practice good emotional care and advocate for their needs.

Eye on the Cure Podcast | Episode 40: Rebecca Alexander

The gene therapy is administered using a less-invasive intravitreal injection.

ViGeneron Launches Clinical Trial of Gene Therapy for RP Caused by CNGA1 Mutations

The drug is thought to work independent of the mutated gene causing RP.

Phase 3 Clinical Trial of NAC Launched for RP Patients

The company is planning a Phase 2/3 clinical trial for therapy in late 2025.

ARVO 2025 Highlight: PYC Reports Encouraging Phase 1/2 Clinical Trial Results for its RNA Therapy Targeting RP (PRPF31 Mutations)

Mohammed Riaz Sabir is a visually impaired athlete from Rotherham who has less than five per cent of his sight. 

He trains on his treadmill at home, but came to England Athletics because he wants to pursue his dream to run outside with the support of a guide runner, and maybe one day run the London Marathon.

But so far, he hasn't been able to find a guide.

He tells Alex Seftel the story of losing his sight later in life, how he has adapted, and his hopes for the future.

#76: Visually-impaired runner who dreams of the London Marathon

The company plans to complete BLA submission in early 2026.

Nanoscope Begins Rolling BLA Submission to FDA for Seeking Approval for its Optogenetic Therapy

The trial is evaluating a cell dose that is 50 percent higher than the highest dose used in a previous Phase 2b trial.

jCyte Launches New Phase 2 Clinical Trial for its Cell-Based RP Therapy

NACA is a gene-agnostic, oral medication designed to preserve vision in people with retinitis pigmentosa and Usher syndrome.

Nacuity’s Antioxidative Therapy NACA Performs Encouragingly in Phase 1/2 Clinical Trial

The Foundation Fighting Blindness is the driving force in the global development of treatments and cures for blinding diseases. To learn more, go to FightingBlindness.org.

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New tracks tagged #retinitispigmentosa