Joe Sooch here. I have a rare disease called FOP where my muscles turn into bones literally I was born with all my limbs working normally with free range. As I get older, I’ll get swellings all over my body and bones just start forming the bones grow and locks my body into place permanently. I can get surgery or more bones will grow. My DNA is faulty so there is nothing any doctor can do to help. I am stuck like this permanently and just have to deal with it. 

https://www.instagram.com/joeysooch/

https://www.youtube.com/watch?v=_5P2U05uTfY&t=524s

Wedding vlog

https://www.youtube.com/watch?v=L-JLGt1R_RA&t=496s

Follow me on instagram!

https://www.instagram.com/joeysooch/

Proof https://www.instagram.com/p/CSzILlaLhor/?utm_source=ig_web_copy_link

More proof https://imgur.com/a/8fTzUcZ

https://www.dailymail.co.uk/video/health/video-1165043/The-boy-turning-stone-The-story-Joey-Sooch.html

Joe Sooch, patient advocate.

The Health Design Podcast brought to you by the Journal of Health Design(www.journalofhealthdesign.com). Features interviews with the world's leading health design experts including clinicians, designers, patients, authors and researchers. Better health by design.