Amazing 1st pod cast hope there are more to come! Clear and so informative. Looking forward to the next one.

In this episode Sheila Handley tells the story of her son Richard, who died in 2012 from constipation at the age of 33. Prof Irene Tuffrey-Wijne talks with Sheila to try and understand how that could have happened and what we must do to stop it happening again.

This podcast episode was edited and produced for the PCPLD Network by Anastasiya Stravolemova

PCPLD Network Podcast: Ep. 4 'When Deaths Go Wrong: The Story of Richard Handley'

Intro

In this first episode, Richard has a cup of tea with his boss, Prof Irene Tuffrey-Wijne, an international expert and Professor of Intellectual Disability & Palliative Care.

Richard and Irene have had many cups of teas together over the years. During this cuppa, Richard asks Irene to explain how she has come to research death and dying in people with a learning disability and how she approaches difficult and distressing conversations. Richard and Irene reflect on their work together and how they relax after long days.

Episode 1: Prof Irene Tuffrey-Wijne

Kathryn Mannix is a palliative care doctor and best-selling author who specialises in talking about death and dying. She started the first cognitive behavioural therapy clinic exclusively for patients who are dying and now, in her retirement tells stories to help everyone understand and prepare for death.

Her first book, ‘With the End in Mind’, was A Sunday Times bestseller and book of the year. It was shortlisted the Wellcome Book Prize and has been translated into 16 languages.

In this podcast, Kathryn joins Richard for a cup of tea to talk about her lifetime of medical experience, how her book is doing, and her love of chickens.

Episode 2: Dr Kathryn Mannix

In this episode, Richard sits with Prof Kathy Curtis, Dean of the Faculty of Health, Science, Social Care and Education and Pro Vice Chancellor at Kingston University. Listen to learn more about leadership in higher education, stress management in high intensity jobs and love of books.

Prof Kathy Curtis has joined Kingston University in 2018.  Prior to that, she held senior academic, leadership and faculty executive positions in two other universities, including leadership of a large School of Nursing and Health Sciences providing a diverse range of programmes. Before her academic career, she has worked in senior roles within healthcare services, such as NHS Intensive Care provision.

Episode 3: Professor Kathy Curtis

PCPLD Network Podcast Series

In this episode, Irene Tuffrey-Wijne and Gemma Allen explore the euphemisms people use for the word "dead", and talk about this with four people with learning disabilities ("She has passed... what, an exam?"). Through a variety of examples and lived experiences, they illustrate the power of language (however well-intended) to confuse or even terrify people.

This podcast episode was edited and produced for the PCPLD Network by Anastasiya Stravolemova

PCPLD Network Podcast: Ep. 1 'Pushing up the daisies: The words we use to talk about death'

In episode 2 of the PCPLD Network podcast Irene Tuffrey-Wijne and Gemma Allen talk about Bucket lists with people with learning disabilities. What would you like to do before you die? What is on your bucket list? And why do people have bucket lists?

This podcast episode was edited and produced for the PCPLD Network by Anastasiya Stravolemova

PCPLD Network Podcast: Ep. 2 'The Bucket List'

It’s November, a month of remembrance. For many people, it’s a time of gathering together and remembering the people we loved, who have died. But how can we do that during a pandemic? And how can we include people with learning disabilities, and help them to remember? Irene Tuffrey-Wijne, Gemma Allen and Richard Keagan-Bull discuss the topic in this episode of the PCPLD Network Podcast.

This podcast episode was edited and produced for the PCPLD Network by Anastasiya Stravolemova

PCPLD Network Podcast: Ep. 3 'Remembering'

The PCPLD Network is a charity. In 1998, a small group of learning disability and palliative care professionals came together, concerned by their experience that people with learning disabilities who were facing a life-limiting illness did not seem to access the same services or receive the same quality of service as the rest of the population. Together, they established the National Network for Palliative Care of People with Learning Disabilities (NNPCPLD), which later changed its name to the PCPLD Network.

Our aims have not changed much since those early beginnings. The PCPLD Network brings together service providers, people with a learning disability and carers working for the benefit of individuals with learning disabilities who have palliative care needs. Our ethos is that people with a learning disability should receive the coordinated support needed in living their lives to the full, until the end of their life.

PCPLD Network Podcast: Ep. 1 'Pushing up the daisies: The words we use to talk about death'

PCPLD Network

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