In episode 147, host Kevin Schaefer talks with Brandi Lewis from Birmingham, Alabama. A blood disorder awareness educator, TEDx speaker, writer, and nonprofit founder, Brandi is passionate about helping others diagnosed with chronic illnesses. She herself has been diagnosed with aplastic anemia and PNH, the symptoms of which began in 2009. Her nonprofit, Brandi’s Blessings, was created to spread awareness and support blood disorder patients. She notes that her greatest accomplishment is having saved three lives by encouraging people to register to become bone marrow donors. Brandi is a dog lover of a labradoodle, Milo, and thinks laughter is the best medicine. 

Follow Brandi on Instagram at @_brandilewis_!

Brandi’s website: www.brandilewis.com
Brandi’s column: https://pnhnews.com/category/columns/from-fear-to-fighter-a-column-by-brandi-lewis/

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To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums.

#147: Brandi Lewis, rare disease advocate and speaker

In episode 148, host Kevin Schaefer talks with Ashley Fox and Madeline Engel from California. Ashley has SMA, and Madeline became her best friend and caregiver when they were in college. They discuss the nuances of friendship and caregiving, plus touch on confronting internalized ableism and navigating graduate school and careers.

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To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums

#148: Ashley Fox and Madeline Engel discuss friendship and caregiving

Daily, digital coverage of the latest SMA news and perspectives.

#147: Brandi Lewis, rare disease advocate and speaker

SMA News Today

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