In episode 134, host Kevin Schaefer talks with Dr. Edward Smith from Hillsborough, North Carolina. Dr. Smith spent the majority of his career as a clinical neurologist, and Kevin was one of his longtime patients. They talk about the state of SMA research and the work Dr. Smith is doing now. SMA News Today contributor Michael Morale also joins to talk with Dr. Smith about his treatment experiences.

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To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums.

#134: Dr. Edward Smith, Neurologist and SMA Specialist

In episode 135, host Kevin Schaefer talks with Ryan Kinnear from Glendale, Arizona. An avid fisherman and outdoor enthusiast, he uses assistive technology to pursue his passions. Ryan talks about using this technology, growing up with SMA, and managing daily life.

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To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums

#135: Ryan Kinnear, Fisherman and Hunter With SMA

In episode 136, host Kevin Schaefer talks with returning guest Shaniqua Granby as she shares life updates and discusses how she navigates struggles and embraces community.

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To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

#136: Shaniqua Granby Discusses Identity and Community

In episode 137, host Kevin Schaefer talks with Jared Wayland from Ontario. Jared discusses growing up with SMA type 3 and becoming a husband and father. He also talks about his passion for music and graphic design and shares advice about building confidence with SMA.

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To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums.

#137: Jared Wayland: Graphic Designer and Music Connoisseur

In episode 138, host Kevin Schaefer talks with Nolan, who lives with SMA, and Blake Shofner from Princeton, Illinois. 

The brothers discuss their dynamic as siblings and business partners, as they are the founders of Mullet Bros Co. They also discuss the importance of humor in their lives and how Nolan’s SMA has impacted them.

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To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums.

#138: Nolan and Blake Shofner, Brother Entrepreneurs

In episode 139, host Kevin Schaefer talks with Dianna Warren from Canton, Ohio. Dianna is an ambassador for Ms. Wheelchair USA, and for 32 years she ran a disability bowling league. She discusses these experiences, living with SMA Type 3, and her marriage of 44 years.

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To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums

#139: Dianna Warren, Ms. Wheelchair USA Ambassador

In episode 141, host Kevin Schaefer talks with Quinn Bucher (he/they) from Athens, Ohio. A student at Earlham College studying theater, he talks about growing up in an arts-oriented household, making theater inclusive for disabled students, and the intersectionality of being trans and having SMA.

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To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums.

#141: Quinn Bucher, Theater Student With SMA

In episode 142, host Kevin Schaefer talks with Savannah and Will Huff from Thomasville, Georgia. Savannah, who has SMA type 3, met Will in 2018. Listen in as they discuss their marriage, careers, and the intersection of married life and caregiving.

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To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

#142: Savannah and Will Huff, Interabled Couple

In episode 143, host Kevin Schaefer talks with Cory Lee from Lafayette, Georgia. A renowned expert on disabled traveling, he has visited all seven continents from his wheelchair. He runs the Curb Free With Cory Lee blog and takes part in speaking engagements around the world. Join the two as they discuss growing up with SMA, Cory’s travel origins, and his hopes for the future of accessible travel.

Cory’s Instagram: https://www.instagram.com/curbfreecorylee/
Cory’s website: https://curbfreewithcorylee.com/

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To take part in our ongoing discussions regarding SMA, please visit www.smanewstoday.com/forums.

#143: Cory Lee, Travel Blogger and Influencer With SMA

In episode 144, host Kevin Schaefer talks with Doug McCullough from central New Jersey. The author of “A Billion People in the Shadows,” a new book about understanding disability, Doug previously worked at Johnson & Johnson Pharmaceuticals and has a background in public speaking. He talks about growing up with SMA type 3, navigating employment with a disability, and advocating for an inclusive society.

Doug’s book: https://publishyourpurpose.com/books/a-billion-people-in-the-shadows-the-ultimate-1-hour-guide-to-understanding-disability/

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To take part in our ongoing discussions regarding SMA, please visit http://www.smanewstoday.com/forums

#144: Doug McCullough, Advocate and Author With SMA

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