https://multiplesclerosisacademy.org/courses/ms-variance/

MS Service Provision in the UK 2019: Raising the Bar

Alissa Willis, Staff Neurologist in the Neurological Institute's Mellen Center for Multiple Sclerosis, Cleveland Clinic, gives us a clinical overview of multiple sclerosis.

For more on multiple sclerosis, visit BMJ Best Practice: bestpractice.bmj.com/topics/en-gb/140

_
The purpose of this podcast is to educate and to inform. The content of this podcast does not constitute medical advice and it is not intended to function as a substitute for a healthcare practitioner’s judgement, patient care or treatment. The views expressed by contributors are those of the speakers. BMJ does not endorse any views or recommendations discussed or expressed on this podcast. Listeners should also be aware that professionals in the field may have different opinions. By listening to this podcast, listeners agree not to use its content as the basis for their own medical treatment or for the medical treatment of others.

Multiple sclerosis

https://multiplesclerosisacademy.org/courses/ms-variance/

Caroline Wyatt (Broadcaster and MS Patient)

Objective: To give us a personal perspective of what it is like to have MS and how to navigate the NHS to get want you want.

MS Variance '19 – Dinner speech by Caroline Wyatt

https://multiplesclerosisacademy.org/courses/ms-variance/

Alyson McGregor (National Director, Altogether Better)

Objective: To inspire us on how to work differently using a collaborative model using examples from other areas. How to judge success?

MS Variance '19 – Collaborative practice: working differently with people in communities

https://multiplesclerosisacademy.org/courses/ms-variance/

Jerry Clough (Programme Director, OPTUM)

Objective: This session will examine how we can get MS services across the UK working together towards a common purpose, and how this could deliver on the ambition of reducing variation and improving the quality of diagnosis and care for people with MS.

MS Variance '19 – From ideas to action: How do we get the change we are looking for?

https://multiplesclerosisacademy.org/courses/ms-variance/

Sue Thomas (CEO Commissioning Excellence, Wilmington Healthcare) 
and Martin Fischer (Director, Fischer Associates Ltd)

Objective: To review the current provision of MS specialist services in the context of how the NHS is being configured. The role of payers, for example, NHSE, in determining who can provide MS services. In addition, the emerging role of technology in improving access to MS services will be reviewed.

MS Variance '19 – Access to MS services: Can we improve on the current hub and spoke model?

https://multiplesclerosisacademy.org/courses/ms-variance/

Prof Gavin Giovannoni (Professor of Neurology, Barts and The London)

Objective: To highlight the importance of the holistic management of MS with a focus on QoL and wellness as a treatment target for MS service.

MS Variance '19 – Lifelong brain health as a target for MS service provision

multiplesclerosisacademy.org/courses/ms-variance/

Rob Sloan (Service Designer, Shift.ms)

Objective: The vision here is for every MS centre in the UK to run an expert patient course designed for pwMS. We envisage the course to cover issues such as: 
(1) navigating the NHS when you have MS, 
(2) understanding your MS service, 
(3) self-monitoring, 
(4) self-management and 
(5) other initiatives for pwMS to help with the development and running of their MS services.

MS Variance '19 – Workstream B: Patients as partners

Elizabeth Mutunga, founder and CEO of Alzheimer's & Dementia Organization Kenya, psychotherapist & HR practitioner, talks with Fionnuala Sweeney, Atlantic Fellow for Equity in Brain Health.

Elizabeth Mutunga: Founder and CEO of Alzheimer's & Dementia Organization Kenya

Four top experts provide a plan to help prevent the Parkinson's pandemic, improve care and treatment, and end the silence associated with this devastating disease

Brain diseases are now the world's leading source of disability. The fastest growing of these is Parkinson's: the number of people with Parkinson's doubled to over 6 million over the last 25 years and is projected to double again by 2040. Harmful pesticides known to cause Parkinson's proliferate, many people remain undiagnosed and untreated, research funding stagnates, and the most effective treatment is now a half century old.

In Ending Parkinson's Disease, four leading doctors and advocates offer a bold but actionable pact to prevent, advocate for, care for, and treat one of the great health challenges of our time. This is a critical guide for anyone who has or could be touched by this disease.

Available March 17, 2020 from Hachette Audio as a digital download, and in Print and Ebook from PublicAffairs. 

Download: 
https://www.downpour.com/ending-parkinson-s-disease
https://audiobookstore.com/audiobooks/ending-parkinson%27s-disease.aspx
https://books.apple.com/us/audiobook/ending-parkinsons-disease/id1501489138
https://libro.fm/audiobooks/9781549123528-ending-parkinson-s-disease
https://www.audible.com/pd/Ending-Parkinsons-Disease-Audiobook/1549123521?qid=1584455205&sr=1-1&ref=a_search_c3_lProduct_1_1&pf_rd_p=e81b7c27-6880-467a-b5a7-13cef5d729fe&pf_rd_r=73T468B1986R4F2GJVT8
https://www.audiobooks.com/audiobook/ending-parkinsons-disease-a-prescription-for-action/405264
https://www.nookaudiobooks.com/audiobook/295688/ending-parkinsons-disease
https://www.estories.com/audiobook/303009/Ray-Dorsey_Todd-Sherer_Bastiaan-Bloem_Michael-Okun_Michael-S-Okun_Bastiaan-R-Bloem/Ending-Parkinsons-Disease
https://www.kobo.com/us/en/audiobook/ending-parkinson-s-disease-2
https://play.google.com/store/audiobooks/details/Ray_Dorsey_Ending_Parkinson_s_Disease?id=AQAAAEBsU2gTFM

Check out our other great titles and more at:
http://www.hachetteaudio.com	

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ENDING PARKINSON'S DISEASE by Ray Dorsey, MD, Todd Sherer, PhD, et al. Read by Alex Hyde-White

In the podcast, we speak to Dr Anita Rose about how you can take care of your mental health during the coronavirus crisis. We also chat to Will Berard, who lives with MS, about how he is coping in the COVID-19 lockdown.

Majority

Coronavirus, MS and the mind

We're living in uncertain times and we know that lots of you, understandably, have questions about the coronavirus and MS. So for this podcast, we've pulled together some of the questions that have cropped up the most and asked Claire, who works in our Information Team, to answer them. We also chat to Carla King, who lives with MS, about her experience of dealing with lockdown.

Coronavirus and MS: Your questions answered

NCTalks with Gavin Giovannoni: advancements in the treatment landscape for multiple sclerosis

Dr Hadi Manji joins Colin Mahoney to discuss the recent paper by Liu and colleagues as well as providing a commentary on how COVID-19 may impact the nervous system and steps to mitigate this. He also discusses the impact of COVID-19 in delivering care at the
 National Hospital for Neurology and Neurosurgery, located in one of the new epicentres for this disease. https://jnnp.bmj.com/content/early/2020/04/20/jnnp-2020-323414

Neurology in the time of COVID - 19

Musings on how COVID-19 has affected MS services and research.

#COVIDMS Friday #11 lockdown

The Neurology Academy is an innovative training programme helping you to hone your expertise within our Academy specialities. 
We are an education provider for clinicians, specialist nurses and professions allied to medicine and the training focus is on both disease management and service transformation.

MS Variance '19 – Workstream B: Patients as partners

Neurology Academy

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